We got a call yesterday afternoon about 4 from the study investigator asking us if we could come in today at noon for blood tests, CT scan, EKG, and doctor visit.
We met with Megan, the investigator first, so she could review the study documents (which we had received 2 weeks ago and read) and then signed the Informed Consent.
He had many vials of blood drawn, then the CT scan, then the EKG. All that went well. Then we were supposed to have the doctor appointment with Dr. Picozzi at 3:20. We finally met with him around 4:30. I guess the CT scan results weren’t back until then.
There were 2 issues that could keep him from being enrolled in the study. First, he has fluid in his abdomen and pelvis. This alone could disqualify him, but they thought they could review with the radiologist and see if it wasn’t a trace amount that would be okay. I guess the fluid is very common in pancreas cancer patients so it is very frustrating to the doctor that this could preclude patients from being enrolled.
The second issue is that Darrel’s platelets are very low. In fact, I just looked up past results for the year and his platelets are the lowest they have ever been. Dr. Picozzi thought this could be from the Lovenox dose being too low. Darrel has had some problems, as previously mentioned in blog posts,
recently with clots around his port catheter and in his left leg. So, Dr. Picozzi wrote a prescription to increase the dose from 80 mg to 100 mg and Darrel is to have another blood test next week to see if the platelet count has increased.
If so, and the fluid issue is resolved, he would probably start the study in 2 weeks. If not, he is probably still eligible for the other study.
Depressing news for us both as he feels like his health is failing and wants to start treatment sooner rather than later.
Millers' Time 
So sorry for your continued roller coaster ride. We need Darrel to get his platelets back platelatling and keep fluids in their proper vessels. I am confident that the timing will be perfect and as it was meant to be, but it has to be frustrating. I am choosing to believe the delay is to get Darrel in the proper line for the study so he will get the treatment that works for him.
You are inspiring so many people with your strength and courage, but it is okay to throw an occasional temper tantrum of the frustration of it all.
Kicking the guardian angels into high gear and pre-approved overtime if necessary to get the job done.
Love,
Vanessa and Gary
Our continued prayers are with you! Darrel, don’t give up yet, there is an ultimate plan although we may not know it and the timing will be perfect! Love you both. I plan on seeing you at Port Orchard in Oct. 🙂